Patient involvement in quality improvement: How a self-management intervention for a long-term condition (Chronic Kidney Disease – CKD) was both developed and delivered to practitioners by a Patient Advisory Group

2012 Conference

Abstract:
Chronic Kidney Disease affects 7-8% of the population. Most have mild to moderate disease but increased cardio-vascular risk and are looked after in the community. People with early CKD are unaware that they can self-manage their condition and/or their healthcare practitioners may be unskilled in how best to support self-care. Our project aims to improve the variability in managing CKD using a quality improvement intervention called a care bundle (set of evidence-based activities grouped together and carried out at the same time). Our bundle comprises three clinical interventions, plus one self-management intervention developed and delivered by our Patient Advisory Group.

26 GP Practices received self-management training, with 253 patients (72% of those asked) utilising the self-management packages. 

Learning and discussion from the paper includes:

• the development, content, and delivery by patients of a training session for practitioners on facilitating self-management.
• a self-management package for people who have CKD: self efficacy.
• questionnaire; educational materials for different learning styles; prompt sheet to address patients’ concerns at consultation; group education.
• the Patient Advisory Group; challenges in practitioner behaviour; financial considerations for practices; qualitative evaluation showing practices highly valued self-management training by patients; what people with CKD gained from this unique approach.

Patient involvement in Quality Improvement